Your story is nothing short of amazing! God has definitely blessed you and your family. Through Evan's journey, God's power is revealed and he is glorified! Thank you for sharing your special story with the world. God speed and bless your beautiful boy!
A true inspiration. You are a great parent
Yes, You are !!
Keep up the good work, people like you make this world a better place.
Hi, I was reading through your blog and noticed where you used bleach in the water and the mans comment. I understand fully why you use it. I was wondering if you have considered useing pharmaceutical grade peroxide? You can get it in bulk in powdered form and mix it to the amount you need to kill bacteria. People take peroxide baths for many health reasons. It will kill the germs and oxygenate the skin. This could be beneficial without the downside of bleach and maybe helpfulbto others who are not able to use a micro silk tub.
GOD bless Evan .. my nephew was born with harlequin ichthyosis .. i would be thankful if you help us .. i'll contact you via email ..
You are nothing short of amazing. Keep up the faith.