-T-Shirts have arrived!!!! For those of you who already "pre-ordered", an email will be sent to you with a Paypal link for payment. If you are interested in purchasing a shirt, please do! Sizes and colors are running out so make sure you get yours before they are gone! But in reality, if they are all gone that would be fantastic for FIRST!!! Small shirts are sold out. Blue shirts are very low. HERE is more info for purchases.
Cheryl B. from Illinois
Nicky G's Wine and Spirits from Torrington, CT
Rob H. from PEI, Canada
Watertown Meat Center from Watertown, CT
Email me email@example.com to arrange for shirt drop off or mail delivery!!
-Rare Disease Day is just around the corner. On February 28th, Rare Disease will be celebrated around the world. It is a day to bring awareness to rare diseases in hopes to find better treatments or cures, one day. Some rare diseases have no treatments or are very hard to diagnose. We are very lucky to have had doctors that not only knew what Ichthyosis was but were the experts on it. A friend in the Ichthyosis community is hosting an event to support FIRST and Ichthyosis awareness. 'Wear that you Care' will be celebrated on Rare Disease Day as we all participate by wearing 'Genes for Jeans' (also supporting the Global Genes Project). Anyone can participate! Wear your denim on February 28th and help support rare diseases.