Thursday, February 21, 2013

UPDATES: T-Shirts, T-Shirt Winners & Rare Disease Day


-T-Shirts have arrived!!!! For those of you who already "pre-ordered", an email will be sent to you with a Paypal link for payment. If you are interested in purchasing a shirt, please do! Sizes and colors are running out so make sure you get yours before they are gone! But in reality, if they are all gone that would be fantastic for FIRST!!! Small shirts are sold out. Blue shirts are very low. HERE is more info for purchases.


-I posted a few weeks ago about giving out a FREE SHIRT in a raffle for those who have helped support FIRST in the past year through fundraising events, inspired by Evan.  Well, I picked names out of a hat and here are the following winners!!! Each winner receives one free shirt (what is available).

Congratulations:

Cheryl B. from Illinois

Nicky G's Wine and Spirits from Torrington, CT

Rob H. from PEI, Canada

Watertown Meat Center from Watertown, CT


Email me dede583@hotmail.com to arrange for shirt drop off or mail delivery!!

-Rare Disease Day is just around the corner. On February 28th, Rare Disease will be celebrated around the world. It is a day to bring awareness to rare diseases in hopes to find better treatments or cures, one day. Some rare diseases have no treatments or are very hard to diagnose. We are very lucky to have had doctors that not only knew what Ichthyosis was but were the experts on it. A friend in the Ichthyosis community is hosting an event to support FIRST and Ichthyosis awareness. 'Wear that you Care' will be celebrated on Rare Disease Day as we all participate by wearing 'Genes for Jeans' (also supporting the Global Genes Project). Anyone can participate! Wear your denim on February 28th and help support rare diseases.



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2 comments:

  1. These are the coolest t-shirts ever! I'm so excited I won! I will proudly wear it and tell everyone how precious Evan is. I adore the little guy and am so proud of him.

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  2. The best way for Treatment of Ichthyosis is to soak the skin in lukewarm water and then slather your still damp skin with a cream moisturizer. You can add epsom salts or add moisturizers like colloidal oatmeal to your bath; salts and moisturizers help your skin absorb the water and lock in the moisture more successfully.

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